31.

What percentage of hospitals regularly submit information to your state EHDI program about the results of newborn hearing screenings?

Table 31.

Average of all hospitals^†	91%
Weighted average of hospitals submitting data	84.12%
Weighted average including state w/ zero facilities submitting data	83.00%
^† One state reported that no hospitals submit data

a. Estimate the percentage of the babies born during the last quarter of 2003 for whom data were submitted (All states reporting):

Table 31a.

All Babies	82%
All Babies Excluding 2 State ≤ 5%	85.28%

b. Which of the following data are submitted by hospitals (No response: 1 state):

Table 31b.
	Number of States
For all births, whether or not a baby was screened	34
Screening outcomes for individual babies	42
Names of babies referred from screening for further diagnostic evaluation	36
Summary statistics from screening program (e.g., number born, number screened, number referred, number diagnosed, etc.)	27

c. Check which, if any, of the following state databases are electronically linked with your state EHDI database:

Table 31c.
	Number of States
Vital statistics	13
Metabolic screening	15
Immunizations	4
Early Intervention	4
Birth Defects	7
WIC	1
Other^†	7
^† Specified Other: CRS Some linkage with Metabolic Screening on back end Pending development of Electronic birth certificate All of the above are connected at some level Lead, home visiting, developmental risk assessment Audiology Clinics, Hospital Birth Roster Records Public Health Information Network (PHIN) Newborn home visiting program

Comments by Respondents:

It is anticipated that this state's EHDI will be linked with vital statistics by early 2005; if not, the approach will be to link with metabolic screening.
In process *planned July 04, #planned early 05

32.

Does your state EHDI program have an electronic (i.e., a computer-based) database of data from newborn hearing screening programs? (No response: 1 state)

Table 32.
Response	Number of States
Yes	46
No	4

a. Was this database system primarily:

Table 32a.
		Number of States
Purchased from a commercial company		16
Developed 'in-house' by someone within your Department of Health		22
A modification of an existing database (check one of the following)		8
	Metabolic screening^†	5
	Electronic birth certificate^†	3
	Other (please specify):
	• Early Track will use EBC information via "dump"	1
^† One state uses both Metabolic & Electronic birth certificate

b. Estimate the percentage of data for the state database that are submitted in the following ways? (No response: 7 states)

Table 32b.
	States Reporting 100% or 0%		States Reporting Other %
	100% (n)	0% (n)	Other % (n)	Average %	Range
Data entered directly into a web-based system	5	35	4	34.25	4 – 98
Data files sent via email	2	32	10	66.52	7 – 99
Data files submitted via disk	2	31	11	27.69	1 – 90
Data submitted on paper (e.g., mail, fax, courier)	9	19	16	23.14	1 – 93
Data obtained from another database (e.g., electronic birth certificate, metabolic screening)	1	29	14	66.64	5 – 98
Other (please specify): • Scanned metabolic cards • All diagnostic audiology reports. EI reports are electronic directly to NEST	0	42	2	45.00	5 – 85

c. To what age do you intend to track your babies? (No response: 9 states; Unknown: 2 states)

Table 32c.
Age in years	Number of states
1	3
2	0
3	19
4	1
5	6
7	3
18	2

Comments by Respondents:

N/A, until diagnosis of hearing loss or normal hearing
Risk factor dependent
Currently to diagnosis and referral to early intervention
Age 3 or date of IFSP
Being determined